There have been so many people that have emailed me. Too many to count. I am so grateful that this blog is touching people across the world. That is such an answer to prayer. To all those people who have emailed me, and I haven't responded yet, I want to say:
First of all, THANK YOU. I'm blessed that you reached out to me, whether it be for help and answers about PN/E, to send me a note of encouragement, or just to find out how I'm doing. I read your email, and I care about you. However, I have set time apart for myself, my daughter and husband, and for my time with God, seeking Him about what I am to do forward. That is the only reason why I haven't answered personal emails to my fightpne@yahoo.com address. I have to take care of myself and sometimes that means taking a step away from the world of PNE. I also have been fighting CRPS and neuroplasticity, so it's been tough lately.
But to answer (vaguely - and I apologize) some of the questions:
- Yes, I am much better since my surgery in Austria last October 2011. I am able to do SO much more! My walking is much better, almost normal on most days, and sitting IS possible without a cushion or seat, and I can do it for longer periods of time as the months go on. However, in times of flare up, or whatever the "centrally maintained pain" is --- things get rough. I won't lie about that. I don't know what is going on in my brain, spinal cord, pain receptors, central nervous system, peripheral nervous system, pudendal nerve, legs, feet, anything. I wish I knew... I wish the doctors knew. The only thing I know I can count on is this:
GOD KNOWS.
He is the ONLY one who knows what is going on with me, and what is to come.... and His word is TRUE and that is what I will continue to rely on - that I will be COMPLETELY healed from this -- ALL of this.... and I will live the abundant life that He promised me (and you-- and all those that believe) in His word. I will NEVER let go of the prophetic word spoken over me when my daughter was only 4 months old and we didn't know what was wrong with me. "God wants to heal your nervous system."
I will never let that go and God knows it! He doesn't want me to let go of it!
God is good --
Sometimes I have bad days --- really bad days.... but God is good. I argue with Him a lot, and yell at Him, but His love never fails.
What a great God we serve. He forgives me again and again.
And I will not give up and neither should you!
I will be back advocating and answering personal emails (God willing) sooner than later.
Much love to all
Psalm 103
