We need more

I have come to the realization that this country, this world, the chronic pelvic pain sufferers like myself who struggle to get both in and out of bed every day deserve and need more doctors and medical professionals to treat and hopefully solve the enigma of Pudendal Neuralgia and Pudendal Nerve Entrapment.

There are so many doctors out there. At a recent wedding I attended, (how I made it through, I don't know... it must have been my supremely cute outfit), I spoke to a well-seasoned urologist about how he was struggling to find a junior partner so that he might retire someday soon. Where are all the specialists going?

I must get back on track. So, it doesn't really take a specialist to learn about PN/PNE, just a motivated medical professional who is willing to study cadavers, learn the mechanics of the Pudendal Nerve, its purposes and its duties, and how it can become compressed or entrapped. Then, the most important of all is HOW CAN WE UNENTRAP THE NERVE IN THE LEAST INVASIVE METHOD POSSIBLE WITHOUT SUCH POOR SURGICAL OUTCOMES?? I know my doctor cares tremendously about his Pudendal patients. I think he is to be commended because he is actually teachable, for being such an accomplished professor and individual himself. Where are the drugs for neuropathic pain that don't come with SEVERE and sometimes deadly side effects?

I hope there is a medical student, resident, fellow, or even attending physician that is reading this blog entry right now because their patient presents with mysterious pelvic pain symptoms. Consider what nerve innervates the majority of the pelvis. Look to the source of how pain signals are even transmitted to our brains..... nerves.

If you have read my previous blog entries, you will see that I have a Bachelors and Masters in Music. NOT MEDICINE. However, I am a patient keenly aware of my body, where my pain lies, and I will not stop my big mouth flapping about this disease until it is as easy to cure as appendicitis.

Help me by posting, emailing me at fightpne@yahoo.com, or contacting me on this blog. I need help. WE NEED HELP. I speak for so many others. SO.MANY.OTHERS. For doctors that have this disease, for PhDs who have had to stop their teaching due to this disease, for singers/songwriters paralyzed by pelvic pain, for young mothers desperate to know what is wrong with them, for cyclists and former engineers who now live on disability.

And, I must close with this: God have mercy on us.